thursday, july 1st 2010

July 1, 2010 at 11:14 pm 8 comments

mike came home this past sunday with the help of a rained out baseball team and great friends. it has been a great experience having him stay with friends for a number of varied reasons. it was a significant break for me and for the kids to experience a lot more freedom from being in the house with an afternoon curfew to be with mike. they experienced a lot more availability with me. i experienced a lot more breathing time. and mike experienced a group of voices demanding more of him than he sometimes gets in the habit of settling for. justin and megan were amazing in working on new motivations and goals with mike from social etiquette and accepting when someone says no to creating a more physically challenging daily schedule where he gets in his wheelchair and out of his bedroom twice a day. mike has risen to some challenges, backslid on some progress and mostly showed a good attitude. the toughest part with mike both seemingly at our friends and even this week at home seems to be a good attitude toward goals or boundaries in theory but a difficulty accepting or implementing them in practice.
it surprises me that we can just slide mike right back in at home with little fanfare. i asked mcKaela the other night how she felt about getting her daddy back home and she said it feels like home again with everyone in place. so it is good. we have not resolved every stress. nor would it be reasonable to expect to. i still wonder what the right responses and motivators are for moving mike forward in relationships and interaction with life.
he has been participating in outpatient physical therapy a few times weekly at marianjoy for the past almost 2 months. he had gotten requalified twice during this stint which reflects well on his progress. he has been working a ton on standing and straightening his torso up, lifting his head upright, & balancing while sitting at these therapy sessions and came home today reporting that he had tried a walker and had put some weight into his legs and maybe lifted a leg to take a step. i couldn’t get a clear trustworthy picture of it between mike and don but if not a step then it was a movement in the right direction. so that is worth celebrating.
oh, and he is getting his hole from where they removed his feeding tube surgically closed july 6th. apparently anything that heals on its own for normal people requires a surgery for mike. they will do the least invasive surgery to close it and have one more invasive option if this ends up being unsuccessful. mike wished for the more invasive first off but i guess they like to do things in a certain order. so, though mike and i have become used to needing the maximum, please pray that this week’s surgery is sufficient to close his wound completely.
i am more tired than i deserve to be with these 3 caregivers carrying a lot of the load, but we are each where we are supposed to be. thank God. happy 4th and freedom, michelle

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Entry filed under: updates.

may 6, 2010 tuesday, august 31, 2010

8 Comments Add your own

  • 1. emily bishop  |  July 3, 2010 at 2:27 am

    so…home again…..May God give you a renewed vigor to handle your day to day responsibilitites again……I cannot fathom the emotional energy that every hour demands from you…I just thank God that you have HIM in your corner….and that HE doesn’t get tired like we do….Glad that MCK is happy that everyone is where they are supposed to be….oh the words of a chlld….HOping that Eli follows his big sister with such an amazing acceptance!
    Love to you.

    Emily

    Reply
  • 2. Kathy z  |  July 3, 2010 at 9:38 am

    Hey michelle,
    we haven’t talked in forever, but know we pray for you all daily. Sounds likes things have improved a lot and a little break for you and the kids was as rehabilitating as is Marian Joy is for Mike. It seems as if justin and megan (thank you both) were not only rehabilitative but progressive with mike.
    Life will be a lot more hectic again (kind of like our house), but hopefully with new structures and schedules, more manageable as well.
    We love and miss all of you!
    kathy z

    Reply
  • 3. Briggs Family  |  July 3, 2010 at 12:42 pm

    Mike being home again…that is wonderful news. We continue to pray for your family. Hope the surgery goes as planned.
    Sandy

    Reply
  • 4. Amy Coleman  |  July 7, 2010 at 3:06 pm

    Glad to hear that Mike is back at home! We are praying for you and your family as you transition once again. It’s good to hear that you all had some time to be replenished and gain some more strength. Feel strong and encouraged to know that you and your family are lifted up in prayer.

    Reply
  • 5. Mitzi  |  July 22, 2010 at 9:09 am

    Hi Michelle,
    It’s wonderful to hear that you were able to have some time to rest. We are still here, and will continue to pray for Mike’s progress and hope, and your energy to continue managing the million details of family life. You are a rock star!

    Reply
  • 6. lisa, Abby, Emma  |  July 31, 2010 at 12:19 am

    Dear Michelle–our love, prayers and hope are withn you, Mike and kids.
    Love, Lisa

    Reply
  • 7. Ripley Biggs  |  August 25, 2010 at 6:33 pm

    Hi, my name is Ripley. Your daughter McKaela is in second grade with my sister Jordan. Our family read the newspaper article today and we want you to know that our prayers are with you. If you ever need help with the kids or anything you can allways come to us.

    Reply
  • 8. Beth Ann Hunter  |  August 27, 2010 at 4:57 am

    Hey Michelle and Mike, it was great to be at camp with Rob and Lindsey Hankins and get a bit more insight into how you all are. I know I heard Rob’s name previously when I used to get the area prayer updates and they did a great job adapting to camp in the UK which is always a challenge but thankfully went very smoothly. Continue to pray for you guys and for wisdom with every decision and joy in the hardships. Hope you can enjoy the time with the kids as much as possible these days. I can’t imagine all you must be juggling!

    Reply

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