October 21, 2008 at 6:33 pm 5 comments

i think i am adjusting my sense of guilt to only accelerate at the month mark of skipping out on updates.  the truth is it is hard to know what to discuss.  lots of days slide by ok and the ones that don’t aren’t as monumental in their aggravation.  they are now simply normal aggravation that doesn’t put you in the mood to discuss.  mike often wakes up with a new ailment that i have a hard time fully buying into.  it is so hard for me to trust his judgement because he seems like he is not always weighing the big picture.  one day he will feel bloated or full in his belly so he asks me to stop feeding him.  i overreact because it seems like a rdiculous demand since food is one of those necessities in life.  so we aggravate each other to no bound.  he is frustrated by his powerlessness, i am overwhelmed by his very singular focus.  the remedies of doctors don’t often leave mike satisfied either by their limited response or their slowness.  so while mike has been steady and stable he is far from satisfied.  we would love prayer for clearer eyesight (eye muscles seem stronger but still blurry–checkup scheduled), digestion issues/stomach discomfort (still on a feeding tube), left hand cramping (cannot open fist), temperature fluctuations (cold, hot, cold…) and asundry other aches and pains that bother him for a day and get eclipsed by a new complaint the next.  pray for my sympathy to kick in because i am a hard caregiver the more worn i get from too may needs.  pray for our wisdom with how to handle finances while still remaining qualified for aid for our caregiver, don.  praise God, please, for the quality of our friendships which he has been so generous with.  thanks to many, far and wide, who support us with gifts, food, listening, patience, sitting, invitations and flexibilty– manna in so many ways.  i pray i have no prayer need so great it requires me writing in less than a month!  thanks for your patience i lack!  oh, and mike’s general prayer, always, is less for details and always for a whole healing.  he waits expectantly.

Entry filed under: updates.

9/24/08 11/1/08 — Mike is eating again!

5 Comments Add your own

  • 1. Rachel E  |  October 21, 2008 at 10:02 pm

    Thanks for sharing your and Mike’s perspectives. Will look forward to your November update! 🙂 Love you, Rachel

  • 2. Matt Koupal  |  October 22, 2008 at 11:05 am

    Hey Michelle-

    Thanks for the update, and praise God nothing urgent has come about. I really appreciate the specific prayer list, because praying changes things for sure.

    Luke would love to see Mike at YL ACCESS, if he’s up to it. Mike has really impacted Luke’s life in cool ways.

    In Him,


  • 3. Heather Schmidt  |  October 24, 2008 at 9:47 pm

    Hey Guys!

    So good to see you today. Hopefully next time Aaron and I can stay longer and play with Eli. Mike, you are looking and sounding great. Just remember to give it to God and lean on Him. I am sure you are impatient and wanting everything at once. He hears you and each day you are getting stronger. Remember how far you have come. I am amazed at your progress and so proud of all that you have done!

    Michelle, you are amazing. Juggling all you do and still so welcoming to us. Chaos of my 3 kids and all. You are truly amazing. I know you are not one to look for compliments and want accolades, but you truly are an inspiration to us all. May you always feel loved and cared for. When you feel lonely and unsympathetic remember how many people are praying for you and love you .

    You guys are awesome! You inspire me daily and want me to serve more. You make me want to know Jesus more fully because I have been privledged to watch your faith. Thank you for letting me be a part of your lives. I love you guys! God Bless!

    Love and tons of prayers,

  • 4. Jane  |  October 28, 2008 at 9:57 am

    Michelle, every night — and sometimes during the day — I pray for all of your family. I pray for Mike to keep getting better and for the kids to understand what’s going on, but most of all I pray for you to continue to have the patience and the courage and the strength to do all you are doing and have to keep doing to keep things on balance. I love to see your smile when I run into at St. J’s. Just know you are loved by all of us and we’re there for you all the time.


  • 5. karin rodriguez  |  November 1, 2008 at 8:53 am

    Hey Mike congratulations on passing part of your swallow test!!
    So proud of you keep up the hard work. Also can’t wait to see you at the young life banquet.

    Karin Rodriguez


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