april 5, 2008

April 5, 2008 at 6:11 pm 7 comments

sorry to be late on the update…

mike got his stitches and rubber band in his trach area removed.  the rubber band left a small hole to heal.  so we will again wait for a hole to heal although it is a much tinier one this time.  and he is talking really well even with the tiny hole.  although he still mostly speaks softly though when motivated he is capable of being louder.

and we picked up his new leg braces on friday and shoe shopped for overgrown shoes to fit over them today and he starts outpatient therapy at marianjoy on monday!  he will go in for three hours at a time three days a week to work on physical (legs/standing), occupational (arms, hands…) and speech (and swallowing) therapy.

please pray that mike would handle and adjust to an appropriate amount of pain.  we have struggled for more than a month with his preference to avoid all pain, occasionally even before it starts.  his approach doesn’t quite coincide with doctor orders to wean off narcotics, switch to over the counter and take as needed instead of around the clock.  i believe much of his pain is anxiety based as well as physical.  he also complains when he is in the wheelchair for an extended time.  i am afraid that such complaints might become obstacles to him or his therapists understanding his capabilities.  i do not want a minute of therapy squandered on something he can suck up.  i am afraid his therapists will be more sympathetic than i am and will pause too often to attempt to pacify him.  since i know by experience there is no pacifying him i don’t want them to waste time on it.  (i also know through long months what real pain looks like for him so i am trying to get him to gain some perspective).  so we have built quite a rift in our differences on the subject of pain treatment. 

also, he has started some insomnia which i am fairly sure should settle into normalcy.  but he is currently tortured by it.  i am slightly tortured as well since he occasionally calls me out of bed at 3, 3:15, 3:30 for no good reason.

so all is exciting and complicated.  thanks for lifting us up… michelle

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Entry filed under: updates.

3/28/08 post-op almost tuesday 3/8/08

7 Comments Add your own

  • 1. Heather  |  April 6, 2008 at 8:26 pm

    Hi All!

    I can’t wait to hear how the first day of therapy goes. Prayers that it is pain free and that all goes smoothly. Prayers for a quiet night tonight with no anxiety. Cast all anxiety on God Mike and He will take care of it. You are not to shoulder anything remember that! He has been with you every step of the way thus far and will continue to be. God bless you all!

    Love and prayers,
    Heather

    Reply
  • 2. Gwen Hubbard  |  April 6, 2008 at 9:17 pm

    Oh, Michele, I hope it goes well tomorrow. I pray he sleeps well tonight (and you) and is rested and ready to work hard tomorrow. I will pray his therapist are patient and wise in working with you both. Thank you for diligently keeping us all updated. Love, Gwen

    Reply
  • 3. Kevin  |  April 7, 2008 at 8:23 am

    Will be praying for huge success with therapy. I remember years ago yelling encouragement at Mike when he was lifting weights to get him to lift the bar up. He can do this. He has a strong mind and his body will follow. I look forward to hearing about his progress in this exciting new phase.

    Reply
  • 4. Bessma  |  April 7, 2008 at 10:03 am

    Thank you for the update and specific honest equests. Praying for a great day at therapy today, for Mike therapisrs be granted disernment to know when and how far to push Mike… this is an exciting phase and you have been waiting soooo long to get to this point… so prayers that Mike will remain healthy and expereince progress that will enourage him to push hard and as my daugher tells her 4th grade students,” Reach for the stars!”

    Reply
  • 5. Sarah Nixdorf  |  April 7, 2008 at 8:43 pm

    If you want to taste freedom, keep going.
    Good luck on your getting this far on your illness. Michelle, it was so nice to meet you on Sunday, and your husband, he looks so more improved than he was a couple of months ago, praise be the
    Creator of healing, may God give you rest (much needed) and your husband needed rest too. May the day at therapy be good and have more prayers every step of the way.
    May you walk with the King as you look forward to the new Jerusalem and a new world to come.
    There is a way as we look forward to the Ressurection.
    See you next Sunday.
    Hallejuah Mike. Keep up the victurious work. Behave for the therapy, tell your body ‘you can do it.’

    Reply
  • 6. Steve Fisher  |  April 7, 2008 at 9:45 pm

    Hey Mike and Michelle:

    My guess is that therapy is going as well as can be expected and that Michelle was right that the therapist were a little soft. Mike, there is no one who knows you better than Michelle. Listen to her. You will have to push yourself and let them push you. It will be un-natural at first.

    Remember: when it is too tough for everyone else, it is just right for God. I am praying about you shooting some hoop with you family soon.

    Love, Steve

    Reply
  • 7. Barbara Gobrail  |  April 9, 2008 at 9:47 am

    I cannot image a physical therapist being soft! Having needed their expertise following a car crash with many broken bones as well as a recent knee replacement, I think their middle name is: Of course you can do it!
    No pain, no gain – another of their credo!
    Following the broken bones, I found an article which talked about the 10 things you never say to a physical therapist – I cannot locate that article, but I remember number 1 was: Never say ‘that was easy!’
    We are praying for all of you!

    Reply

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