Archive for August, 2007

8/15/07 2:45 pm

just got back from mike’s Dr visit at marianjoy rehab hospital. the dr recommended mike get a baclofen pump inserted in his gut. i was sent home with a folder full of info which i am sure will educate me so that we can move forward. the pump is meant to decrease mike’s muscle tone and spasms. this would allow him more control of his musles in order to make more physical gains. it ideally would also help wih his pain which is all seemingly muscle related. it would mean a surgery and a month more or so to adjust the pump’s dosage to mike’s needs before being reevaluated for therapy again. but i feel excited about this potential new step leading to more significant progress. in our time after the appointment we meandered over to mike’s old digs at the hospital and were lucky enough to see his old therapists. i cannot actually describe how it feels to be in a crowd of people interested, concerned, and eager for mike in the way they were. we are all looking forward to getting him back into their encompassing care. i am so thankful again for the people God has placed around mike who have cared for him with such immense compassion and enthusiasm. i praise him for how he never lets us out of his own perfect providence. i must say i wish mike had been more talkative for them but we are both pretty wiped from a long week. anyhow, more details of new developments will be coming in time. pray for this pump, for our wisdom, for the future. thanks, michelle

August 15, 2007 at 2:47 pm 11 comments

4:15 pm 8/9/07

i am afraid if i wait to write something with focus and quality i will never get to it. so here is the best i have while the kids nap and mike watches some new dvds of the show “24”. camp was amazing for me. it was such a joy to be exhausted with junior high kids, to chat with leaders, to praise God for the wondrous way he works in us. i have brought a nursing baby or been pregnant for the last 4 years of trips and it was a true pleasure to go with God alone and leave everyone else in capable hands. my family had our kids who apparently didn’t even miss us. when asked mckaela answered that she didn’t miss us “because God was watching over us… just like God was watching over her”. and mike was great at home with his parents who reported that they thought he worked hard in my absence. he is scheduled to head to marianjoy rehab hospital for an evaluation appointment on August 15. i personally hope he gets inpatient therapy where they can check his trach status (maybe removal), his eyesight (new glasses needed?), his speech, physical, and occupational therapy needs, any wheelchair adjustments, and any and everything else. but i do trust that God has faithfully worked in mike in his good time and will continue to do so, so i will wait and see what transpires. mike is still experiencing pain, mostly in small doses every day and then will have 2-3 hard days every few weeks. but he is hanging in there, healthy, enjoying whoever he gets to see stopping by our house, both our regulars and those out of the blue surprises (this means you, tracy, eric, clay and chris!). I love seeing the smile pull his mouth up when he gets such surprises. he is no less fed by the worship we continue to have wednesdays at 7 at our house. i don’t know whether it will continue past august so i will determine to relish these last few weeks in case they are our last. i will be honest that i do get frustrated that more people don’t determine themselves to make it out to a worship when they are in town. a very small faithful group have kept this alive for mike these past 2 months and have shared in the blessing that is this simple gathering of singing. i have heard from more than one person that it is emotionally hard for a number of reasons to make it out to visit mike. and the awkwardness of a visit is made worse by feeling guilty too. i completely understand that but i do not understand allowing all that to actually excuse someone from catching up with mike every few months. i don’t think the whole world must come visit mike but i guess i would say that if you or someone you know is someone that mike would on occasion make a point of catching up with over coffee back when he was healthy, then ask when was the last time you made it a point to catch up with him? please understand that we really miss some of our friends. let the devil take back his weapons of guilt and just come on over sometime, maybe even on one of these last few wednesday nights. i pray that those visits are as lifegiving to others as they are to mike and i.
gotta go, responsibilities call, michelle

August 9, 2007 at 4:26 pm 4 comments


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