Archive for May, 2007

5/24/07 11 pm

i know i know it’s been a while since i have updated.  i feel like a chicken running around in circles with no head.  there is always something i am late with, missing, forgot or throwing together.  mike is still amazing surprising, annoying,impressing, and frustrating me.  he takes a random and sudden interest in something and then passionately grills me for details from our long unused hottub maintenance, the Young Life golf marathon this week, finances, anything that pops into his head.  he is still slowly but surely progressing with all therapies, physical, occupational, and speech.  and his pain is still mostly manageable with ice packs and position changes.

he goes in for a head CT next tuesday as a followup from his april surgery.  his scar is beautiful and his hair is growing back with highlights on one side from the peroxide i used to clean the wound early on.  he has had a serious cough (with clear congestion) for about a month.  could be allergies but i am hoping to get a pulmonologist to check the trach and its necessity while we are at the hospital that day.  my desire would be that with mike’s strong cough we might be able to risk removing the trach soon.  it has been a non issue since fall that it was better to keep it as a precaution should mike get very sick again.  the advantages would be that it would be less infection risk and would probably aggravate his throat less and produce less congestion.  please pray for continued unhindered progress, for relief from sudden spurts of anxiety, for that monstrous cough and for the right time for trach removal.  we are more than blessed by the amazing people we have been called to run this race with.  oh, i forgot, mike’s sister-in-law is staying with him this weekend while i galavant off for a young life work weekend helping prepare timberwolf lake in michigan for that first batch of summer campers.  it will be a different kind of work and i am excited to be able to go with relief that mike is well cared for.  and our daytime caregiver, Don, is plugging away doing all the new exercises the therapists have been working on.  he is an immense blessing as well.

full of praise (and occasionally that cranky complaining streak),  michelle

May 24, 2007 at 10:57 pm 5 comments

5/15/07 4 pm

Sarah VanDrunen who sang at a benefit concert for our family in March is again going above and beyond in helping us.  She and my childhood church that put together the concert with her are selling a CD recording of the concert to raise additional funds.  If anyone is interested in a great CD  for just $7, please contact Shaina Terpstra at (708) 709-0100.

mike was showing some humor today during his speech therapy session trying to skew as many of the word association exercises as possible to include a reference to Coke.  and if he stumbled over a pairing and the speech guy ended up supplying the answer, mike would congratulate and cheer him on.  i couldn’t stop laughing.  he is enjoying more moments such as these and it is a pleasure.  with love, michelle

May 16, 2007 at 4:11 pm 10 comments

5/11/07 11:15 pm

mike is doing so well still.  he is enjoying special visits with some out of town friends lately and it is so fun to see him smile or laugh or respond to a story.  it is so fun to see him tired out not just from pain but from a good therapy workout or interacting with visitors.  he seems to be handling the pain better.  i am not sure if he is having just as much pain as before or my crankiness just convinced him to use some discretion about how often to moan.  but i am feeling a lot more compassionate than last week and he has been more specific about how to help him through the painful moments.  so we are good.  thanks for the prayer that sustains us!  in Christ, michelle

May 11, 2007 at 11:35 pm 5 comments

5/4/07 4pm

kids are napping and mike and i are lazing about watching tv.  i did catch the no-vomit flu from eli and so far mike just has a bad cough and mcKaela a runny nose.  my mom was called out for emergency duty for the kids for a few days while i barely managed mike and myself.  but i am feeling energized now that i can move again.  i laid around lamenting my inability to move my own muscles and felt a real kinship to michael.  he is full of ideas and demands and frustrations.  he wants to eat, and drink and walk around outside (no chair).  i am reminding him that all things are possible but require more muscle strength and time.  he is occasionally torn up by this slow process.  but the rest of the time he is asserting opinions and conversation.  his words are occasionally mixed up with his intent: “my tv is killing me”.  then i ask– do you mean your arm? and he says “yes!”  but the clarity is always exciting and his pain has still stayed minimal.  i am still getting opinions on home therapy vs marianjoy outpatient but he is being seen by speech, occupational and physical multiple times a week and is participating well.  so i am slow to decide but he is working hard in the meantime.  thanks for flowers, food, cards, encouragements, comments, visits… everything that makes each day still blessed no matter what else comes!  -michelle

May 4, 2007 at 4:11 pm 3 comments


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