6/26/06 10:35 pm

June 26, 2006 at 10:47 pm 9 comments

Monday is assessment day at Marianjoy where the therapists and doctors check in and summarize Mike’s weekly progress.  He did not make great strides in physical or occupational therapy.  He is still fighting the distraction and weariness that come with the leg spasms he is suffering from.  They are planning on using Botox to relax the muscles enough to allow him to concentrate and regain momentum.  Speech therapy is going well.  He has been swallowing liquids from a spoon and will hopefully move on to pureed foods next week.  Mike can say whole sentences clearly on occasion but for the most part can use only a few words together intelligibly.  We are concentrating on helping him strategize to help others understand him.  He wants to share long-winded thoughts and we must encourage him to choose key words to convey meaning to listeners.  His speech therapist did try a communication board but he did not use it in any reliable way so we are sticking to verbal speech right now.  The perk is that every time he speaks, intelligibly or not, he is using and strenthening the muscles which is the problem anyhow.  So we are only going in the right direction.  Mike is scheduled for 3 more weeks at Marianjoy and then on to a new “subacute” care facility where he will still enjoy therapy 5 times a week before we can look at him coming home.

So, a lot of information to digest.  I asked Mike’s doctor what to specifically aim our weapon of prayer at and he said to concentrate on the speech.  As his speech comes along he believes Mike will feel more satisfied, motivated and connected.  Please pray for just exactly that.  Also please continue to lift up Mike’s caregivers and therapists.  They are incredible and their enthusiasm, compassion and investment in him are evident.  Thank God for that!  Thanks for prayers, visits, and faithfully keeping with us for the long haul.              -michelle

Entry filed under: updates.

6/23/06 9:55 pm WOOOHOOO! 6/28/06 11:59 pm

9 Comments Add your own

  • 1. Mike and Mitzi Kalin  |  June 27, 2006 at 6:55 am

    Dear Mike and Michelle,

    By the time you speaking smoothly you two will be the best communicators! I am excited for the day when you can easily articulate all the feelings, frustrations, fears, joys and comforts you are experiencing through this. That day will come. You will probably write a book about your experiences and it will be on the New York bestseller list. Who knows how God will use these experiences. We are daily thankful for you guys and so proud of you both. I know it is not much of a comfort, but it is so wonderful to know people like you are there. It is a testament that our God really is alive and working. We hope to see you soon.
    Love,
    Mitzi and Mike

    Reply
  • 2. Wayne and Sharon Bollinger  |  June 27, 2006 at 8:15 am

    Dear Michelle,

    It was with great joy that we got to visit Mike on Sunday afternoon, two days ago. We loved to see how he used his eyes to communicate as well as all of his efforts to verbalize, of which there were many. One thing came out perfectly clear; when I asked if we could pray with him before leaving he said a very nice and clear “Yes”!!!! God’s grace and steadfastness still abound in that man of yours and you should be sooooo proud!! We are, too!! It has been a while since we wrote you a comment, but don’t think for a minute that we aren
    ‘t checking inALL of the time and keeping you both in our prayers daily. This little note is just a refresher for you to remind you of the many like us that are cheering you on from behind, tireless on your behalf as your journey continues. We trust in God to continue to strengthen, encourage, heal, give patience, and meet every other unspoken need. We love you guys!!!

    Love, Wayne and Sharon

    proud. We are too!!

    Reply
  • 3. Jackie & Ben  |  June 27, 2006 at 8:50 am

    Dear Michelle

    thats great to hear that he is doing much better jackie and I will continue to have you guys in are prays, and we will pray for his speech, may God continue to bless you and mike love you guys.

    Jackie & Ben

    Reply
  • 4. Todd  |  June 27, 2006 at 2:07 pm

    Congrats on the recent news. We are so happy that Mike is coming along so well. I know it is frustrating due to the speech and continued worriness but having gone through similar events. When I was finally able to come home, both myself and my wife had and started a brand new relationship that will carry you through the rest of your lives. It’s amazing what your mind learns even in this situation. Congrats agin and continued progress and prayers.

    Reply
  • 5. Chris Matousek  |  June 27, 2006 at 3:24 pm

    hey there roomate!

    we are so glad to hear that things are progressing, even if they are progressing slowly. we are praying for you here at SBR. it is amazing how many people up here know you and/or mike and are also praying for your family. we will make sure to put speech as the number one thought in our prayers. we love you!

    christina matousek (atkins) and family

    Reply
  • 6. Becky and Bob Williams  |  June 27, 2006 at 6:43 pm

    We will pray for clear speech and sweet communication between the two of you.
    Keep up the effort Mike it will get easier.

    Reply
  • 7. Brittany Boyles  |  June 28, 2006 at 1:17 pm

    Mike & Michelle,
    Just wanted to let you know that you are in my prayers and that you both are a wonderful inspiration.
    Brittany

    Reply
  • 8. Matt Koupal  |  June 28, 2006 at 3:41 pm

    Michelle:

    Thanks for the prayer direction and updates. I look forward to seeing you again soon! Luv you both!

    Matt

    Reply
  • 9. Jenny Escalante  |  June 28, 2006 at 5:12 pm

    hey michelle, haven’t touched base in a while — you’re still in my heart and hopes. here is a poem that reminds me of you b/c your faith is like this little church, it remains through the winters and summers of life. i hope that you always have such a church to worship in.

    i am a little church (no great cathedral)

    i am a little church (no great cathedral)
    far from the splendor and squalor of hurrying cities
    -i do not worry if briefer days grow briefest,
    i am not sorry when sun and rain make april

    my life is the life of the reaper and the sower;
    my prayers are prayers of earth’s own clumsily striving
    (finding and losing and laughing and crying) children
    whose any sadness or joy is my grief or my gladness

    around me surges a miracle of unceasing
    birth and glory and death and resurrection:
    over my sleeping self float flaming symbols
    of hope,cand i wake to a perfect patience of mountains

    i am a little churchc(far from the frantic
    world with its rapture and anguish)cat peace with nature
    -i do not worry if longer nights grow longest;
    i am not sorry when silence becomes singing

    winter by spring, i lift my diminutive spire to
    merciful Him Whose only now is forever:
    standing erect in the deathless truth of His presence
    (welcoming humbly His light and proudly His darkness)

    ee cummings

    Reply

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